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Posts Tagged ‘65RedRoses’

The Weekly Re-cap: We talked about the weather, Michael & I going out for a motorcycle ride, we wished Michael a Happy Birthday, mourned great TV shows that are no longer with us,  said goodbye to a 25-year-old blogger named Eva Markvoort who passed away, and learned about my naughty little puppy Isabella.

The Weekly Read: The Finishing Touch – Details That Make a Room Beautiful

The Weekly Music: Private Eyes by Hall & Oates because my friend Rude Cactus used it for his blog title yesterday.

The Weekly Movie: The Lovely Bones I read the book a while back and thought it was okay.  I didn’t love the movie.  It was kind of creepy like the book.  Though I did like Mark Wahlberg in it….

The Weekly Beverage: I drank a coconut creme Dunkin’ Donuts coffee on the way to The Albany TweetUp and it was yummy.  This is a big deal because I rarely drink coffee.

The Weekly Amazing Fact: According to OMGFacts: Giraffes can’t yawn.
Pretty much all warm-blooded and cold-blooded animals yawn. Birds, fish, mammals, and of course, people. An average human will yawn 250,000 times in one lifetime, and animals have been photographed yawning all the time. However, neither giraffes nor whales have ever been caught yawning.

Bugs Birthday Cake

The Weekly Birthdays: Lee Wooden, Sung Choo, Theresa Setzer, Jerry Bertram, Todd Harrison, Michael Henry, Jeff Beach, Aimee Giese, Brigette Moore, Cameo Crounse, Nancy Lee Grahn, Cami Rutherford Bajek, Lynn Kinnear, Paul Chenkus, Robyn Dousharm, Jim Milliken, Humberto Martinez, and Sheri Monaco.  Happy Birthday to all of you!  I hope you all had awesome birthdays!!   Leave me a comment to let me know what you did to celebrate your big day.  🙂

The Weekly Activity: Michael & I went to the April Albany TweetUp.

The Weekly new people I’ve found on Twitter: Melissa Ward, WordPress.com, Bettie’s Cakes, Kimmy Tavarez, Two of a Kind, Jaci Sabolsky, and Grant Johnston.

The Weekly Charity I’m Pimping: The National MS Walk in Long Island is on May 2nd.  My friend Kim will be walking and she’s pretty close to her goal.  Anyone who can help with a donation would be appreciated.  Click HERE for the link.

Weekly Grand Totals: My blog has had over 6,500 views.  To some of you that might be nothing, but considering I only started it at the beginning of the year I think it’s pretty decent.  Thank you to all my readers.  Keep commenting and encouraging your friends to subscribe.  🙂

The Weekly Hypothetical: If you were going on a trip, what would you most likely forget to pack?

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Eva Markvoort - Picture taken off of CNN site courtesy of Markvoort

My friend David emailed me a story from CNN today.  It was about a 25-year-old girl who lived in a suburb of Vancouver Canada named Eva Markvoort who died on March 27th of cystic fibrosis.  For those of you who don’t know cystic fibrosis is an incurable disease that causes mucus to accumulate in the lungs.

She started her blog in 2006 and narrated it to chronicle her life.  She called the blog 65RedRoses.  The name came from her childhood inability to pronounce cystic fibrosis.  She and many children refer to the disease as “65 roses.”  Markvoort added the word red because it was her favorite color.

The blog followed her on her journey with her disease while she waited for a double lung transplant.  Eva GOT her lung transplant and appeared to be on the path of recovery.  Almost 2 years after, her body started rejecting the lungs and every breath became a battle.  Her blog reflected the battle and at time was hard-core and raw as far as her vomiting, gasping for breath, etc.

Despite her physical difficulties, Eva kept the main focus of her blogging to be about love.  In a video entry where she talks about her impending death, Markvoort said: “I think I’m very lucky, because I’ve loved more than you could possibly think, could possibly imagine. So I’m celebrating that: celebrating my life.”

Photo from Eva's 65RedRoses - This made me smile

From CNN:

She championed cystic fibrosis awareness and organ donations. From Los Angeles to Poland, letters, stuffed animals and cards poured into her hospital room.

“I felt so selfish when I stumbled across your [LiveJournal] on here, because I’ve been smoking cigarettes for years, taking my lungs for granted. You helped me quit the worst habit I’ve ever had,” one wrote.

When Markvoort was too frail, she dictated blog posts to her friends and family.

“She had already processed the concept of dying,” her mother said. “And for her, she came to terms with it quite quickly. For her it was like, ‘Oh, my gosh, I don’t know how much time I have. I have things to say.’ There was a sense of urgency on her part.”

Sometimes, her posts have no words, just pictures of her and her loved ones, with their eyes crossed, tongues sticking out and comical gestures.

So today say a prayer for a girl who fought to the end and spread the message of love while on her journey.  Check out her blog.  I particularly enjoyed the pictures tag.  You can tell she was loved by her friends and family.

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